Learn more about the SON gene and connect with other Simons Searchlight families with the resources below:


Support Resources

  • Simons Searchlight Community – SON Facebook group
  • Geisinger Developmental Brain Disorder Gene Database – SON

Research Article Summaries

We currently do not have any article summaries for SON, but we add resources to our website as they become available.

The information available about SON is limited, and families and doctors share a critical need for more information. As we learn more from children who have this gene change, we expect our list of resources and information to grow.



Research Opportunities

Simons Searchlight

Help the Simons Searchlight team learn more about SON genetic changes by taking part in our research. You can learn more about the project and sign up here.


Family Stories

We do not currently have any stories from SON families.

Click here to share your family’s story!