News and Updates

Meet Amanda Nolan, Co-founder, CUL3 Support & Awareness.

Meet Jackie Steinberg, Vice President & Scientific Liaison, STXBP1 Foundation.

Learn about the inspiring work of Emily Amerson, President of CTNNB1 Connect & Cure.

Meet Aaron Harding, SYNGAP Research Fund, Board Member & Critical Operations Director.

Meet Carole Bakhos, Executive Director at Jordan’s Guardian Angels.

Meet Rebeca Ridings Figueroa, Cure CLCN4's Research Program & Charity Manager.

Amber Freed leads SLC6A1 Connect, uniting for SLC6A1 research, family support, and awareness.

Trish Flanagan leads YBRP, uniting for HNRNPH2 research, family support, and awareness.

Liz brings positivity and support to families with GRIN2B. Learn more about her advocacy.

Caroline shows how community can accelerate answers by participating in documentary filmmaking.