News and Updates

Get the latest updates from Simons Searchlight, including articles about our participants, scientists, and others for our community.

News
A Message from the Simons Searchlight Genetics Team
The Simons Searchlight Genetics Team has a special message for our community.More
Webinar
LIVE Q&A: Ask a Simons Searchlight Genetic Counselor (5/25 at 12pm ET)
Simons Searchlight Genetic Counselors answer questions during Public Health Genetics Week!More
Family Story
Family Stories // Historias Familiares: Gabriel (CTNNB1)
Simons Searchlight shares the story of Gabriel and his family's journey.More
Resource
Navigating the World of Rare Disorders
Knowing the cause of your child’s neurodevelopmental diagnosis can be a relief.More
News
An Update from the Clinical Data Team
Meet two members of the Simons Searchlight clinical data team.More
Family Story
Tommy's Rare Disease Story
Karen shares her family’s rare disease journey.More
News
New Process to Redeem Amazon rewards
There is a new process to redeem Simons Searchlight Amazon rewards. More
Video
Rare Disease Day 2022 | Simons Searchlight and SPARK voices
Learn why Simons Searchlight staff and families #CareForRare!More
Researcher Profile
Researcher Profile: Roni Yamane, MSc. and Tzofia Drori, MSc.
We interviewed Drori and Yamane about their Research Match project.More
COVID
Survey 5: Updates, One Year After the Start of the COVID-19 Pandemic
Our findings of how the Simons Searchlight caregivers feel about the COVID-19 vaccine.More

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