Participating in Other Languages
Simons Searchlight is now available in languages other than English. Our goal is to offer a way for non-English speaking people to participate in the research program.
Currently, Simons Searchlight is available in the following languages (click below to see our brochure in each language):
If you are not comfortable participating in English and are fluent in one of the languages on our list, we will ask you to complete the following steps. Not all of our surveys are translated into each language, so your list of surveys may be different from someone who participates in English.
We hope to continue to open up our research community to more families with additional languages.
Enrollment Process for Other Languages
Start by clicking “Join Us Today” to register in your preferred language.
The consent form has been officially translated by a medical translator.
If you have a child who has a genetic disorder, add them and complete their consent.
Upload your or your child’s original genetics lab report that provides the detail on your genetic variation. No need to translate this document for us.
Complete a Medical History Phone Call
Schedule a medical history phone call with our genetic counselor. A medical translator will be on the phone with us to help translate the information accurately.
Check your Simons Searchlight dashboard for surveys in your language. Stay up to date by reading Simons Searchlight emails and following us on social media!
We add surveys to the study regularly, and some surveys are repeated every year, along with a follow-up medical history phone call. We all learn more by tracking changes over time.
How do we choose languages to add?
What happens to my data that I provide to Simons Searchlight ?