Posts

DanYale, mom to David (16p11.2 deletion)

Our visit to Seattle was great!!! The team there was very efficient and worked really hard to make things as easy for us as possible. We had received a schedule of events ahead of time and therefore we knew what to expect. Things moved along as planned, and there were no surprises. They had thought […]

Leah, mom to Khobi (16p11.2 dup)

After feeling quite alone with such rare testing results and limited information available to us, we have now been put in touch with many other families who share a similar story. We are looking forward to developing friendships, as we learn about the link we all share. – Leah, mom to Khobi (16p11.2 dup)

Karen, mom to Daniel (16p11.2 del)

Simons VIP has picked the crème de la crème to conduct their study. We could not have had a better experience. We were treated with such sincerity and compassion by the Boston Team. We absolutely loved Dr. Hanson and Alyss!! – Karen, mom to Daniel (16p11.2 del)

Deborah, mom to Cinco and Theo (16p11.2 dup)

My kids loved everyone there and all of us were so comfort-able. Cinco still asks if we can go back and visit “our new friends in Seattle”. I am grateful that the doctors spent so much time with my children and were able to direct us to helpful resources. It was a great learning experience […]

Melissa, mom to Ashley (16p11.2 dup)

All and all it was a great trip! The team in Seattle went above and beyond to make sure that our visit was smooth. They made us all feel very at ease. Although there is still so much to learn about 16p, I feel I left Seattle with a better understanding of my Ashley. I want […]

Christie, mom to Raylin (16p11.2 dup)

Our experience in Seattle was absolutely wonderful. We are so thankful for this opportunity. The team was super!!! – Christie, mom to Raylin (16p11.2 dup)

Kaitlyn, mom to Madelyn (16p11.2 dup)

We had a great experience in Boston and the team was super friendly. I really felt like we made some new friends, they were so supportive and understanding. Alyss and Maddy formed a bit of a bond. Maddy was sad when we left her. – Kaitlyn, mom to Madelyn (16p11.2 dup)

Michelle, mom to Jack (16p11.2 del)

We would do this 100 times over. It was a positive experience. Everyone [in Houston] treated us well… they brought in the best of the best. We were impressed with everybody. Everyone was very informative, very open to speaking and answering our questions. I was worried about testing all day with a son with anxiety […]