Learn more about SETBP1 and connect with other Simons Searchlight families with the resources below.
LATEST REGISTRY REPORT
Download the latest quarterly report here. The goal of this report is to share up-to- date data contributed by families. The new report features information from the Children’s Sleep Habits Questionnaire (CSHQ). The CSHQ is a survey that you fill out on your dashboard. If you want to be included in future reports, join Simons Searchlight today!
To view past registry reports go to the bottom of this page and click on the dropdown menu tab labeled “Previous Registry Reports.”
Research Article Summaries
Previous Registry Reports