English 
Español 
Deutsch 
Français 
Italiano 
Nederlands 
Português Posts
Leading the Way: An Interview with Amber Freed
Amber Freed leads SLC6A1 Connect, uniting for SLC6A1 research, family support, and awareness.
Read MoreWendy Chung Interviewed for Rare Revolution Magazine
Read about Dr. Chung’s impactful career in rare disease research in this article.
Read MoreUnderstanding the Importance of Sharing Your Annual Medical History
Discover the vital role you play in advancing rare disease research with Katina Calakos.
Read MoreRare Disease Awareness Month: Webinar Series
Simons Searchlight is hosting a webinar series for Rare Disease Awareness month.
Read MoreJoin the Celebration: Rare Disease Awareness Month
Simons Searchlight stands with our community to honor this global awareness initiative.
Read MoreDecember 2023: New Simons Searchlight Data Available to Researchers
New Simons Searchlight phenotypic data were recently added to SFARI Base.
Read MoreA Message of Gratitude from Simons Searchlight
We want to share our appreciation with our community.
Read MoreLeading the Way: An Interview with Trish Flanagan
Trish Flanagan leads YBRP, uniting for HNRNPH2 research, family support, and awareness.
Read MoreWelcoming New and Current Members to Our Community Advisory Committee
Meet our CAC members, who play a pivotal role in guiding Simons Searchlight.
Read MoreLeading the Way: An Interview with Liz Marfia-Ash
Liz brings positivity and support to families with GRIN2B. Learn more about her advocacy.
Read More