Learn more about the RORB gene and connect with other Simons Searchlight families with the resources below:


Support Resources

  • Simons Searchlight Community – RORB Facebook group
  • Geisigner Developmental Brain Disorder Gene Database – RORB


GeneReviews are a great resource to bring to your child’s clinicians. These publications provide a summary of current research on genetic conditions and information on ongoing care.

There is currently no GeneReviews for RORB.


Research Article Summaries

We currently do not have any article summaries for RORB, but we add resources to our website as they become available.

The information available about RORB is limited, and families and doctors share a critical need for more information. As we learn more from children who have this gene change, we expect our list of resources and information to grow.


Research Opportunities

Simons Searchlight

Help the Simons Searchlight  team learn more about RORB genetic changes by taking part in our research. You can learn more about the project and sign up here.


Family Stories

We do not currently have any stories from RORB families.

Click here to share your family’s story!