Posts

Our Participants: 10-Year Anniversary Breakdown

In the last 10 years, Simons Searchlight has evolved to include more than 150 genetic conditions. As part of our 10-year review, we are taking a look at the participants within our community. “In working closely with families across all of our conditions over the last 10 years, we can see one thing: while every […]

Simons Searchlight Member Amber Freed Looks for a Gene Therapy “Miracle”

Learn more about Amber Freed’s quest to find answers.

Simons Searchlight 2021 Family & Research Virtual Conference

Find a variety of educational videos from our 2021 Virtual Conference.

Researcher profile: Siddharth Srivastava, M.D.

We interviewed Siddharth Srivastava, M.D., a pediatric neurologist at Boston Children’s Hospital.

Q&A with Dr. Cora Taylor: Behavioral Interventions for the Simons Searchlight Community

Cora Taylor, Ph.D. answers your questions about behavioral interventions.

10 landmark achievements for Simons Searchlight in the last 10 years

Simons Searchlight celebrates 10 years of making a difference in rare genetic neurodevelopmental research.

COVID-19 Infection and the Neurodevelopmental Population

Dr. Wendy Chung has an update about COVID-19 for the Simons Searchlight community.

Survey 3: Development and Mental Health during COVID-19

The results for Simons Searchlight’s third survey on COVID-19.

Survey 2: Impact of COVID-19 on Medical Supports and Caregiver Mental Health

The results for Simons Searchlight’s second survey on COVID-19 are summarized in this article.

Researcher Profile: Anne T. Berg, Ph.D.

Read our interview with Anne T. Berg, Ph.D.