Posts
Researchers Use Simons Searchlight Data to Support Research Projects
Simons Searchlight collects information from you and your family, and connects it to researchers!
Read MoreSurvey 4: Access to Education, Therapies, and Services during COVID-19
The results of Simons Searchlight’s fourth survey on COVID-19 are summarized in this article.
Read MoreOur Participants: 10-Year Anniversary Breakdown
In the last 10 years, Simons Searchlight has evolved to include more than 150 genetic conditions. As part of our 10-year review, we are taking a look at the participants within our community. “In working closely with families across all of our conditions over the last 10 years, we can see one thing: while every […]
Read MoreSimons Searchlight Member Amber Freed Looks for a Gene Therapy “Miracle”
Learn more about Amber Freed’s quest to find answers.
Read MoreSimons Searchlight 2021 Family & Research Virtual Conference
Find a variety of educational videos from our 2021 Virtual Conference.
Read MoreResearcher profile: Siddharth Srivastava, M.D.
We interviewed Siddharth Srivastava, M.D., a pediatric neurologist at Boston Children’s Hospital.
Read MoreQ&A with Dr. Cora Taylor: Behavioral Interventions for the Simons Searchlight Community
Cora Taylor, Ph.D. answers your questions about behavioral interventions.
Read More10 landmark achievements for Simons Searchlight in the last 10 years
Simons Searchlight celebrates 10 years of making a difference in rare genetic neurodevelopmental research.
Read MoreCOVID-19 Infection and the Neurodevelopmental Population
Dr. Wendy Chung has an update about COVID-19 for the Simons Searchlight community.
Read MoreSurvey 3: Development and Mental Health during COVID-19
The results for Simons Searchlight’s third survey on COVID-19.
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