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Family Stories // Historias Familiares: Gabriel (CTNNB1)
Simons Searchlight shares the story of Gabriel and his family’s journey.
Read MoreNavigating the World of Rare Disorders
Knowing the cause of your child’s neurodevelopmental diagnosis can be a relief.
Read MoreAn Update from the Clinical Data Team
Meet two members of the Simons Searchlight clinical data team.
Read MoreTommy’s Rare Disease Story
Karen shares her family’s rare disease journey.
Read MoreNew Process to Redeem Amazon rewards
There is a new process to redeem Simons Searchlight Amazon rewards.
Read MoreRare Disease Day 2022 | Simons Searchlight and SPARK voices
Learn why Simons Searchlight staff and families #CareForRare!
Read MoreResearcher Profile: Roni Yamane, MSc. and Tzofia Drori, MSc.
We interviewed Drori and Yamane about their Research Match project.
Read MoreSurvey 5: Updates, One Year After the Start of the COVID-19 Pandemic
Our findings of how the Simons Searchlight caregivers feel about the COVID-19 vaccine.
Read MoreResearcher Profile: Joseph Gleeson, M.D.
We interviewed Joseph Gleeson, M.D. about his Research Match project.
Read MoreResearchers Use Simons Searchlight Data to Support Research Projects
Simons Searchlight collects information from you and your family, and connects it to researchers!
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