Anne T. Berg, Ph.D., is a Research Professor at Northwestern Feinberg School of Medicine and a member of the Epilepsy Center at Ann & Robert H. Lurie Children’s Hospital of Chicago. Her research has focused on the “natural” history and outcomes of seizures and epilepsy with a specific emphasis on three factors:
- seizure outcomes,
- developmental and cognitive consequences of epilepsies in children, and
- the impact that all of these have on the quality of life of patients and families.
She was also a key researcher in the Multicenter Study of Epilepsy Surgery. Along with Susan Spencer and Barbara Vickrey, Berg contributed to the literature defining the seizure, psychiatric, cognitive, and quality of life outcomes of patients who underwent epilepsy surgery. In 2007, she played a pivotal role in focusing National Institute of Neurological Disorders (NINDS) research priorities on the cognitive, developmental, and behavioral co-morbidities of epilepsy, and she organized sessions at the American Epilepsy Society meeting to investigate these areas and identify research opportunities for improving patients’ outcomes. In 2013, Berg co-chaired the NINDS-sponsored Curing Epilepsies conference and also organized and led the following workshops:
- Priorities in Pediatric Epilepsy Research: Improving Children’s Futures Today, Neurology, 2013
- Seizure Burden in Severe Early-life Epilepsy: Perspectives from Parents, Epilepsia Open, 2019
Currently, Berg spearheads the Precision Medicine Initiative for Epilepsy at Lurie Children’s where she is leading efforts to restructure the electronic health record to support clinical care in the genetic era, reporting, quality improvement, and research. She leads the Natural History Project and the Ability Study, which are aimed at understanding the full effect and range of neurological, medical, behavioral, and other challenges for children and families affected by developmental epilepsies and encephalopathies, including SCN2A-DEE. Her goal is to perform research that provides the necessary evidence to support changes in practice that will improve the diagnosis, treatment, and management of these severe neurodevelopmental disorders and ultimately improve the lives of children and their families.
Read our interview with Dr. Berg here.