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Get the latest updates from Simons Searchlight, including articles about our participants, scientists, and others for our community.

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The Pardos' Journey with NAA15
Family Story
The Pardos' Journey with NAA15

Discover the inspiring story of the Pardos.
Seizure History Survey Available to French and Dutch-Speaking Participants
Data
Seizure History Survey Available to French and Dutch-Speaking Participants

Visit your dashboard to find this survey available for you to complete.
The Shacklock-Aylings' Journey with 7q11.23 Duplication Syndrome
Family Story
The Shacklock-Aylings' Journey with 7q11.23 Duplication Syndrome

Discover the inspiring story of the Shacklock-Aylings.
New Quarterly Data Reports - October 2024
Data
New Quarterly Data Reports - October 2024

Our latest report offers updated insights and fresh data on Simons Searchlight participants!
Leading the Way: An Interview with Emily Amerson
Leading the Way
Leading the Way: An Interview with Emily Amerson

Learn about the inspiring work of Emily Amerson, President of CTNNB1 Connect & Cure.
The Les' Journey with SCN2A
Family Story
The Les' Journey with SCN2A

Discover the inspiring story of the Les.
The Talbotts' Journey With 1q21.1 Duplication Syndrome
Family Story
The Talbotts' Journey With 1q21.1 Duplication Syndrome

Discover the inspiring story of the Talbotts.
Dr. Wendy Chung Honored with RARE Champion in Health Equity Award
Announcement
Dr. Wendy Chung Honored with RARE Champion in Health Equity Award

Congratulations to Dr. Wendy Chung on this well-deserved recognition!
The Gaetans' Journey With ATRX
Family Story
The Gaetans' Journey With ATRX

Discover the inspiring story of the Gaetans.
Call for Applications to Join Community Advisory Committee
CAC
Call for Applications to Join Community Advisory Committee

Share your voice and submit your application to join our CAC!