Organizing Medical Records
Rare diseases can be hard to diagnose and even harder to treat and manage. Over the years, people who have genetic conditions may see many primary care doctors and specialists at different hospitals. Keeping track of medical records can be a challenge, even for the most organized people.
There are ways to create and maintain a personal medical file. Some people like paper files and others favor electronic files or a combination of the two. Choose whatever works best for you. The most important thing is that the records are easy to access and are up to date.
Electronic Medical Records