Articles

Get the latest updates from Simons Searchlight, including articles about our participants, scientists, and others for our community.

An Autism Diagnosis in Adulthood Leads to a New Career Goal

SPARK for Autism recently shared Braxton Webb’s experience receiving a genetic diagnosis, DYRK1A.

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Researcher profile: Roni Yamane, MSc. and Tzofia Drori, MSc.

Drori and Yamane used Simons Searchlight’s Research Match program to launch a survey for Searchlight participants.

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Survey 5: Updates, One Year After the Start of the COVID-19 Pandemic

Our findings of how the Simons Searchlight caregivers feel about the COVID-19 vaccine are summarized below.

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Researcher profile: Joseph Gleeson, M.D.

We interviewed Joseph Gleeson, M.D. about his Research Match project that is open to the Simons Searchlight community.

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Survey 4: Access to education, therapies, and services during COVID-19

The results for Simons Searchlight’s fourth survey on COVID-19 are summarized in this article.

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Researcher profile: Siddharth Srivastava, M.D.

We interviewed Siddharth Srivastava, M.D., a pediatric neurologist at Boston Children’s Hospital and specializes in neurogenetics.

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10 landmark achievements for Simons Searchlight in the last 10 years

Simons Searchlight has been making strides for genetic neurodevelopmental conditions since its launch in Dec 2010.

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COVID-19 infection and the neurodevelopmental population

Dr. Wendy Chung has an update about COVID-19 for the Simons Searchlight community.

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Survey 3: Development and Mental Health during COVID-19

The results for Simons Searchlight’s third survey on COVID-19 are summarized in this article.

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Survey 2: Impact of COVID-19 on Medical Supports and Caregiver Mental Health

The results for Simons Searchlight’s second survey on COVID-19 are summarized in this article.

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Simons Searchlight Member Amber Freed Looks for a Gene Therapy “Miracle”

Amber Freed shares how she helps move research forward for her son with SLC6A1-related syndrome.

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Impact of COVID-19 on Therapies, Services and Medical Supports

Simons Searchlight wanted to learn how our participants are being affected by COVID-19. The survey results are in.

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Simons Searchlight Responds to COVID-19

Dr. Wendy Chung reaches out to the Simons Searchlight community.

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