Posts
New Quarterly Reports – August 2023
The latest report includes updated information on 37 genetic communities.
Read MoreHow to Read the Vineland Adaptive Behavior Scales Growth Chart
Learn to interpret Vineland Adaptive Behavior Scales growth charts with Dr. Snyder.
Read MoreNew Simons Searchlight Seizure History Survey Results Now Available
Get important seizure information for your genetic condition.
Read MoreNew Annual Medical History Survey
The Simons Searchlight team is always working to make research participation more accessible!
Read MoreSimons Searchlight: January 2023 Data Release
In January 2023, Simons Searchlight released new data for use in research studies.
Read MoreSimons Searchlight Community Data Snapshot: Feelings & Emotions
We care about you and the data you provide us through our surveys.
Read MoreComplete Your Yearly Medical History Update Online
We are moving all of our annual follow-ups to a new online survey.
Read MoreNew List of Genetic Variants in Simons Searchlight
This list includes 2,069 individuals with a genetic condition.
Read MoreSimons Searchlight Attended the Global Genes Conference
The conference celebrates the stories of the rare disease community.
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