Simons Searchlight: January 2023 Data Release

In January 2023, Simons Searchlight released new data for use in research studies. Approved investigators can request the data via SFARI Base.

Some highlights of this data release include:

  • Updated summary data files for the Medical History Interview, Previous Diagnosis Interview, and Seizure History Survey
  • 836 new Vineland-3 records
  • 1,190 new QI-Disability records
  • Revised lab results file including variant information and revised variant classifications
  • Updated developmental milestone data, including mobility and communication
  • Longitudinal seizure survey data, aligned with the Rare Epilepsy Network

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