Posts
New ORCA Survey: Measuring Communication in Rare Neurodevelopmental Disorders
ORCA offers a more comprehensive and accurate understanding of communication abilities.
Read MoreSimons Searchlight Now Available in German, Italian, and Portuguese!
Simons Searchlight expands language access. Learn more.
Read MoreCelebrating 15 Years of Simons Searchlight: A Journey of Progress and Hope
Read Dr. Chung’s letter to the Simons Searchlight community.
Read MoreClaim Your Simons Searchlight Rewards for Completing Surveys!
We are happy to share that over 78,000 surveys have been completed to date.
Read MoreNew Grant Opportunity: Conference Support for Rare Neurodevelopmental Disorder Communities Participating In Simons Searchlight
This grant aims to enhance the research component of patient advocacy community conferences.
Read MoreReflecting on 2024: A Year of Progress and Collaboration!
Learn more about Simons Searchlight’s 2024 Year in Review.
Read MoreDr. Wendy Chung Honored with RARE Champion in Health Equity Award
Congratulations to Dr. Wendy Chung on this well-deserved recognition!
Read MoreJoin the Celebration: Rare Disease Awareness Month
Simons Searchlight stands with our community to honor this global awareness initiative.
Read MoreA Message of Gratitude from Simons Searchlight
We want to share our appreciation with our community.
Read MoreWelcoming New and Current Members to Our Community Advisory Committee
Meet our CAC members, who play a pivotal role in guiding Simons Searchlight.
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