Journey of Hope: Families Share Their Stories with Simons Searchlight

Listen to the heartfelt experiences shared by families like Jennifer Sills, Lindsey Noonan, Sarah Johnson, Nick Seaver, and Elisabeth Mellinger as they navigate the world of rare genetic disorders. Learn how their involvement in #SimonsSearchlight has brought hope, answers, and unity to their lives.

Be inspired by their stories.

Patient advocacy communities featured: SETBP1 Society, CSNK2A1 Foundation, MED13L Foundation, and Hope for HIVEP2.

Follow Our Progress

Sign up for the Simons Searchlight newsletter.