By: Nicky, Parent of Amelia, a 14 year old with an SLC6A1 genetic change
“Just take one day at a time.”
What is your family like?
It’s just Amelia and myself; she is 14.
What do you do for fun?
Walk, swim, she loves music and dancing
Tell us about the biggest hardship you face.
Her severe speech disorder makes it hard for her to socialize.
If you could give one piece of advice to someone recently diagnosed with this genetic change, what would it be?
Just take one day at a time.