Posts
Leading the Way: An Interview with Franki Herrera
Meet Franki, patient advocate and 16p11.2 foundation leader.
Read MoreConference Planning Toolkit for Patient Advocacy Organizations
Find resources, templates, and insight on how to plan a conference!
Read MoreLeading the Way: An Interview with Mathijs van Unen
Meet Mathijs, advocate and co-founder, MED13L España.
Read MoreLeading the Way: An Interview with Amanda Nolan
Meet Amanda Nolan, Co-founder, CUL3 Support & Awareness.
Read MoreNew Grant Opportunity: Conference Support for Rare Neurodevelopmental Disorder Communities Participating In Simons Searchlight
This grant aims to enhance the research component of patient advocacy community conferences.
Read MoreLeading the Way: An Interview with Jackie Steinberg
Meet Jackie Steinberg, Vice President & Scientific Liaison, STXBP1 Foundation.
Read MoreLeading the Way: An Interview with Emily Amerson
Learn about the inspiring work of Emily Amerson, President of CTNNB1 Connect & Cure.
Read MoreLeading the Way: An Interview with Aaron Harding
Meet Aaron Harding, SYNGAP Research Fund, Board Member & Critical Operations Director.
Read MoreLeading the Way: An Interview with Carole Bakhos
Meet Carole Bakhos, Executive Director at Jordan’s Guardian Angels.
Read MoreLeading the Way: An Interview with Rebeca Ridings Figueroa
Meet Rebeca Ridings Figueroa, Cure CLCN4’s Research Program & Charity Manager.
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