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Simons Searchlight’s Commitment to Data Privacy and Security
Your privacy is very important to us.
Read MoreNew Quarterly Data Reports – April 2025
Our April 2025 report offers updated insights and fresh data on our participants.
Read MoreNew ORCA Survey: Measuring Communication in Rare Neurodevelopmental Disorders
ORCA offers a more comprehensive and accurate understanding of communication abilities.
Read MoreNew Quarterly Data Reports – January 2025
Our latest report offers updated insights and fresh data on Simons Searchlight participants.
Read MoreSeizure History Survey Available to French and Dutch-Speaking Participants
Visit your dashboard to find this survey available for you to complete.
Read MoreNew Quarterly Data Reports – October 2024
Our latest report offers updated insights and fresh data on Simons Searchlight participants!
Read MoreClaim Your Simons Searchlight Rewards for Completing Surveys!
We are happy to share that over 88,000 surveys have been completed to date.
Read MoreNew Quarterly Data Reports – August 2024
Quarterly reports feature new information on 56 genetic communities, including 5 new groups.
Read MoreNew Quarterly Data Reports – April 2024
Quarterly reports feature new information on 53 genetic communities, including 9 new groups.
Read MoreDecember 2023: New Simons Searchlight Data Available to Researchers
New Simons Searchlight phenotypic data were recently added to SFARI Base.
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