Simons Searchlight Eligibility

Thank you for your interest in Simons Searchlight. Currently, we do not support research participation in the language you indicated on your questionnaire and we are not able to move forward with your family’s enrollment.

Searchlight is dedicated to expanding its resources so that we may enroll all families with these rare genetic changes and hear every family’s unique perspective. In the future, if we offer participation in your chosen language, we will contact your family with details on how to start your research contribution.

If you have questions about language requirements, please reach out to the study coordinators by email at or by phone at 1-855-329-5638 (toll-free).

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