2021 Virtual Conference Recap

We appreciate your participation in the 2021 Simons Searchlight Family & Research Virtual Conference. We hope that the information throughout the days was of value and interest to you and your family. See below for some useful post-conference information.

Conference Presentations and Videos

If you missed the conference or a session, or you want to re-watch the presentations, we have uploaded all of the conference videos to our YouTube page. The full playlist is below.

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Conference Survey

We invite you to submit this short survey to share your feedback about your conference experience.

Document: Parent-Led Interactive Brainstorm about What’s Working for your Child’s Development

This document is a collection of shared resources, ideas, and tools from families. This document is not meant to take the place of medical advice. Simons Searchlight does not endorse the suggestions made during this interactive brainstorming session. Always consult with your doctor about your genetic condition and health care choices. Suggestions found here are from parents and caregivers about what has worked for them on various topics.

Remaining Questions from the Q&A Talks

We understand that not all questions were answered during the Q&A talks. We have created this “Unanswered Questions from Q&A Talks” document that lists the session name, questions, and answers. We hope that this is a helpful resource.

Virtual Photo Booth from Conference