Learn more about the SMARCC1 gene and connect with other Simons Searchlight families with the resources below:


Support Resources


Research Article Summaries

We currently do not have any article summaries for SMARCC1, but we add resources to our website as they become available.


The information available about SMARCC1 is limited, and families and doctors share a critical need for more information. As we learn more from children who have this gene change, we expect our list of resources and information to grow.


Research Opportunities

Simons Searchlight

Help the Simons Searchlight team learn more about SMARCC1 genetic changes by taking part in our research. You can learn more about the project and sign up here.


Family Stories

We do not currently have any stories from SMARCCfamilies.

Click here to share your family’s story!