{"id":45465,"date":"2025-11-24T10:39:58","date_gmt":"2025-11-24T15:39:58","guid":{"rendered":"https:\/\/www.simonssearchlight.org\/2024\/04\/01\/aider-la-recherche-sur-les-maladies-rares-avec-les-crid\/"},"modified":"2025-12-02T09:16:15","modified_gmt":"2025-12-02T14:16:15","slug":"aider-la-recherche-sur-les-maladies-rares-avec-les-crid","status":"publish","type":"post","link":"https:\/\/www.simonssearchlight.org\/fr\/2025\/11\/24\/aider-la-recherche-sur-les-maladies-rares-avec-les-crid\/","title":{"rendered":"Ajoutez votre CRID \u00e0 votre compte Simons Searchlight"},"content":{"rendered":"<h4>Dans la recherche sur les maladies rares, chaque information compte. Des progr\u00e8s significatifs sont r\u00e9alis\u00e9s lorsque les chercheurs peuvent relier des donn\u00e9es provenant de diff\u00e9rentes \u00e9tudes. C&#8217;est l\u00e0 qu&#8217;intervient l&#8217;identifiant de recherche clinique (IDRC). <\/h4>\n<p>Un CRID est un code \u00e0 huit caract\u00e8res qui <strong>relie vos donn\u00e9es d\u00e9personnalis\u00e9es \u00e0 travers les \u00e9tudes de recherche<\/strong>, telles que <span class=\"notranslate\">Simons Searchlight<\/span>, sans utiliser votre nom ou vos informations personnelles. Il aide les chercheurs \u00e0 relier les points, \u00e0 prot\u00e9ger votre vie priv\u00e9e et \u00e0 \u00e9viter le travail en double. Il s&#8217;agit d&#8217;un num\u00e9ro de liaison de recherche qui <strong>permet \u00e0 vos donn\u00e9es de contribuer \u00e0 de multiples \u00e9tudes tout en restant d\u00e9personnalis\u00e9es en toute s\u00e9curit\u00e9<\/strong>.  <\/p>\n<p>La cr\u00e9ation de votre CRID ne prend que quelques minutes. Suivez les \u00e9tapes ou regardez la vid\u00e9o ci-dessous. <\/p>\n<h3><strong>Comment cr\u00e9er votre CRID :<\/strong><\/h3>\n<ol>\n<li>Aller \u00e0 <a href=\"http:\/\/thecrid.org\" target=\"_blank\" rel=\"noopener\">TheCRID.org<\/a><\/li>\n<li>Cr\u00e9ez un identifiant de 8 caract\u00e8res (lettres ou chiffres)<\/li>\n<li>Partagez-le avec vos \u00e9quipes de recherche et <span class=\"notranslate\">Simons Searchlight<\/span> (voir les \u00e9tapes ci-dessous).<\/li>\n<\/ol>\n<h3><strong>Pour ajouter votre CRID \u00e0 <span class=\"notranslate\">Simons Searchlight<\/span> :<\/strong><\/h3>\n<ol>\n<li>Acc\u00e9dez \u00e0 votre <a href=\"https:\/\/bit.ly\/Simons_Searchlight_Dashboard\" target=\"_blank\" rel=\"noopener\">compte <span class=\"notranslate\">Simons Searchlight<\/span><\/a><\/li>\n<li>Cliquez sur Param\u00e8tres du compte<\/li>\n<li>Saisissez votre CRID<\/li>\n<\/ol>\n<p><span style=\"font-weight: 400;\">Merci de partager votre CRID avec <span class=\"notranslate\">Simons Searchlight<\/span>. Les CRID ont un impact consid\u00e9rable sur la mani\u00e8re dont nous \u00e9tudions les maladies rares en nous rassemblant, en centralisant l&#8217;acc\u00e8s \u00e0 l&#8217;information et en donnant aux patients les moyens d&#8217;agir.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Pour toute question, veuillez envoyer un courriel \u00e0 nos coordinateurs d&#8217;\u00e9tude \u00e0 l&#8217;adresse suivante <\/span><a href=\"mailto:Coordinator@SimonsSearchlight.org\"><br \/>\n  <span style=\"font-weight: 400;\">Coordinator@SimonsSearchlight.org<\/span><br \/>\n<\/a><span style=\"font-weight: 400;\">.<\/span><\/p>\n<iframe loading=\"lazy\" title=\"Lecteur vid\u00e9o YouTube\" src=\"https:\/\/www.youtube.com\/embed\/v_YzpT-wLEM?si=sJ6_H6sT8RbCxT5M\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n<p><strong>Pour contribuer \u00e0 la sensibilisation, veuillez t\u00e9l\u00e9charger le <a href=\"https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2025\/08\/18074150\/How-to-share-CRID-graphic-3.png\" target=\"_blank\" rel=\"noopener\">graphique<\/a> et le <a href=\"https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2025\/08\/18074152\/How-to-share-CRID-graphic-1.pdf\" target=\"_blank\" rel=\"noopener\">PDF<\/a>.<\/strong><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-64736 size-large\" src=\"https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2025\/08\/18074150\/How-to-share-CRID-graphic-3-1024x576.png\" alt=\"\" width=\"1024\" height=\"576\" srcset=\"https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2025\/08\/18074150\/How-to-share-CRID-graphic-3-1024x576.png 1024w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2025\/08\/18074150\/How-to-share-CRID-graphic-3-300x169.png 300w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2025\/08\/18074150\/How-to-share-CRID-graphic-3-768x432.png 768w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2025\/08\/18074150\/How-to-share-CRID-graphic-3-1536x864.png 1536w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2025\/08\/18074150\/How-to-share-CRID-graphic-3.png 1920w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Chaque information compte dans la recherche.<\/p>\n","protected":false},"author":18,"featured_media":45470,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[195,194],"tags":[],"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/posts\/45465"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/users\/18"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/comments?post=45465"}],"version-history":[{"count":15,"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/posts\/45465\/revisions"}],"predecessor-version":[{"id":74239,"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/posts\/45465\/revisions\/74239"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/media\/45470"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/media?parent=45465"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/categories?post=45465"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/tags?post=45465"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}