{"id":82449,"date":"2026-08-18T12:57:37","date_gmt":"2026-08-18T16:57:37","guid":{"rendered":"https:\/\/www.simonssearchlight.org\/ressources\/centre-de-ressources-simons-searchlight-sur-la-transition-vers-lage-adulte\/"},"modified":"2026-09-24T11:17:39","modified_gmt":"2026-09-24T15:17:39","slug":"centre-de-ressources-simons-searchlight-sur-la-transition-vers-lage-adulte","status":"publish","type":"page","link":"https:\/\/www.simonssearchlight.org\/fr\/ressources\/centre-de-ressources-simons-searchlight-sur-la-transition-vers-lage-adulte\/","title":{"rendered":"Passage \u00e0 l’\u00e2ge adulte : ressources et participation \u00e0 des \u00e9tudes de recherche"},"content":{"rendered":"

Ce que vous devez faire pour continuer \u00e0 participer au<\/h2>\n

programm
\n\"\"<\/p>\n

Lorsque votre enfant atteint d\u2019une maladie g\u00e9n\u00e9tique rare atteindra l\u2019\u00e2ge l\u00e9gal de la majorit\u00e9, vous devrez remplir le questionnaire \u00ab Transition vers l\u2019\u00e2ge adulte<\/strong> \u00bb afin qu\u2019il puisse continuer \u00e0 participer au programme Simons Searchlight<\/span>.<\/p>\n

Ce questionnaire, qui prend moins de 2 minutes \u00e0 remplir<\/strong>, porte sur les d\u00e9cisions que vous et votre famille avez prises concernant l\u2019autonomie et la prise de d\u00e9cision de votre enfant en tant qu\u2019adulte. Vos r\u00e9ponses d\u00e9termineront les modalit\u00e9s de sa participation future au programme Simons Searchlight<\/span> ainsi que la proc\u00e9dure de consentement applicable \u00e0 l\u2019\u00e2ge adulte.<\/p>\n","protected":false},"excerpt":{"rendered":"

Ce que vous devez faire pour continuer \u00e0 participer au programm Lorsque votre enfant atteint d\u2019une maladie g\u00e9n\u00e9tique rare atteindra l\u2019\u00e2ge l\u00e9gal de la majorit\u00e9, vous devrez remplir le questionnaire \u00ab Transition vers l\u2019\u00e2ge adulte \u00bb afin qu\u2019il puisse continuer \u00e0 participer au programme Simons Searchlight. Ce questionnaire, qui prend moins de 2 minutes \u00e0 […]<\/p>\n","protected":false},"author":6,"featured_media":0,"parent":37987,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"class_list":["post-82449","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/pages\/82449","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/users\/6"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/comments?post=82449"}],"version-history":[{"count":8,"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/pages\/82449\/revisions"}],"predecessor-version":[{"id":83083,"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/pages\/82449\/revisions\/83083"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/pages\/37987"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/media?parent=82449"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}