{"id":82455,"date":"2026-08-18T12:57:37","date_gmt":"2026-08-18T16:57:37","guid":{"rendered":"https:\/\/www.simonssearchlight.org\/recursos\/centro-de-recursos-simons-searchlight-para-la-transicion-a-la-edad-adulta\/"},"modified":"2026-09-24T11:17:46","modified_gmt":"2026-09-24T15:17:46","slug":"centro-de-recursos-simons-searchlight-para-la-transicion-a-la-edad-adulta","status":"publish","type":"page","link":"https:\/\/www.simonssearchlight.org\/es\/recursos\/centro-de-recursos-simons-searchlight-para-la-transicion-a-la-edad-adulta\/","title":{"rendered":"Transici\u00f3n a la edad adulta: recursos y participaci\u00f3n en investigaciones"},"content":{"rendered":"<h2>Lo que tienes que hacer para seguir participando<\/h2>\n<p> en \u00ab<br \/>\n<img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-82305 \" src=\"https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2026\/08\/18112913\/Henrys-no-background-for-Adulthood-webpage-1-1024x936.png\" alt=\"\" width=\"542\" height=\"495\" srcset=\"https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2026\/08\/18112913\/Henrys-no-background-for-Adulthood-webpage-1-1024x936.png 1024w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2026\/08\/18112913\/Henrys-no-background-for-Adulthood-webpage-1-300x274.png 300w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2026\/08\/18112913\/Henrys-no-background-for-Adulthood-webpage-1-768x702.png 768w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2026\/08\/18112913\/Henrys-no-background-for-Adulthood-webpage-1-1536x1404.png 1536w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2026\/08\/18112913\/Henrys-no-background-for-Adulthood-webpage-1-2048x1872.png 2048w\" sizes=\"auto, (max-width: 542px) 100vw, 542px\" \/><\/p>\n<p>\u00bb Cuando tu hijo o hija con una enfermedad gen\u00e9tica rara alcance la mayor\u00eda de edad, tendr\u00e1s que <strong>rellenar la encuesta \u00abTransition to Adulthood<\/strong> \u00bb para que pueda seguir participando en \u00ab<span class=\"notranslate\">Simons Searchlight<\/span>\u00bb.<\/p>\n<p>La encuesta <strong>te llevar\u00e1 menos de 2 minutos<\/strong> y <strong>te<\/strong> preguntar\u00e1 sobre las decisiones que t\u00fa y tu familia hab\u00e9is tomado respecto a la independencia y la capacidad de decisi\u00f3n de tu hijo como adulto. Tus respuestas determinar\u00e1n c\u00f3mo seguir\u00e1 participando en <span class=\"notranslate\">Simons Searchlight<\/span> y qu\u00e9 proceso de consentimiento para adultos se aplicar\u00e1.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Lo que tienes que hacer para seguir participando en \u00ab \u00bb Cuando tu hijo o hija con una enfermedad gen\u00e9tica rara alcance la mayor\u00eda de edad, tendr\u00e1s que rellenar la encuesta \u00abTransition to Adulthood \u00bb para que pueda seguir participando en \u00abSimons Searchlight\u00bb. La encuesta te llevar\u00e1 menos de 2 minutos y te preguntar\u00e1 sobre [&hellip;]<\/p>\n","protected":false},"author":6,"featured_media":0,"parent":18223,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"class_list":["post-82455","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/es\/wp-json\/wp\/v2\/pages\/82455","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/es\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/es\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/es\/wp-json\/wp\/v2\/users\/6"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/es\/wp-json\/wp\/v2\/comments?post=82455"}],"version-history":[{"count":8,"href":"https:\/\/www.simonssearchlight.org\/es\/wp-json\/wp\/v2\/pages\/82455\/revisions"}],"predecessor-version":[{"id":83084,"href":"https:\/\/www.simonssearchlight.org\/es\/wp-json\/wp\/v2\/pages\/82455\/revisions\/83084"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/es\/wp-json\/wp\/v2\/pages\/18223"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/es\/wp-json\/wp\/v2\/media?parent=82455"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}